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Aargh. I recently tried to get in touch with my doctor about getting a referral for a sleep study, to discover she is no longer practicing (or if she is, not through Fenway, and I don’t have a way of getting in touch with her).

[livejournal.com profile] cathijosephine had previously given me a glowing recommendation for her doctor, Kevin Kapila, who also works with Fenway. He sounded perfect for me in a number of ways. Tragically, I just discovered from his office that he’s no longer seeing new patients. ([livejournal.com profile] cathijosephine, if you want to ask about that next time you see him, in case his receptionist is more certain he’s not taking new patients than he is, I’d be delighted.)

So, looks like I’m in the market for a new doctor. Any recommendations? Here are my preference, in approximate order of importance. Note that only the top few are absolutely essential.

  • Is taking new patients. :-(
  • Takes Blue Cross (is there anybody who doesn’t?)
  • In reasonable walking distance either from my house near Quincy Center or from Northeastern University (or T-accessible on a lunch hour from the latter).
  • Can get me a sleep-study referral quickly.
  • Will share information with me, take things I say seriously, and generally not talk down to me.
  • Is comfortable with queer, poly, kinky patients.
  • Will want to take his/her time with me when we have appointments.
  • Is email-accessible, and willing to do quick simple followup things via email or the phone.
  • Can make appointments for relatively urgent stuff in a timely fashion.
  • Takes a relatively holistic approach to his/her patients’ health. (For instance, my previous PCP wanted to know about emotional stresses in my life in case they were affecting my health.)
  • Is affiliated with Fenway Community Health. (I’m assuming this would make the transition go more smoothly.)
  • Is willing to give me advice and not write me off if I don’t take it. (For instance, I’m not going to give up salt or red meat, or stop going out in the sun without sunscreen, even though I know those things might be better for me. I’m happy to hear that they would be better for me, but then I don’t want to fight about it.

Date: 2006-07-26 21:57 (UTC)
From: [identity profile] rivermyst.livejournal.com
I was diagnosed with borderline sleep apnea in january, and they wanted to give me a CPAP machine.

The night I was fitted for it, I slept hardly at all even though the study claims I did! Even though I was on Ambien, it sure didn't feel like it, and I had to go to work late and take a nap at home.

So I opted for another method...I began diet and weight loss, and after only about 15 pounds lost I noticed a bigggg difference. That worked for me, and I"ve gone on to lose alot more, but my initial motivator was avoiding the CPAP machine.

I hope you find a doc local to you. There is a beautiful sleep lab up here in my town in NH, and I did have a great Neurologist...too bad you're not up here!

Good luck!

Date: 2006-07-27 02:04 (UTC)
From: [identity profile] rivermyst.livejournal.com
I can't sleep on my back either, I think the spinal fusion in the trachea area does have something to do with all of it...
It added to the apnea.

And I'm having this breast reduction soon, and I'm supposed to sleep on my back for a while! Can't crush them ya see.

Recliner here I come....I can sleep reclined.

Date: 2006-07-27 13:48 (UTC)
From: [identity profile] mud-puppy.livejournal.com
Hiya! I was diagnosed with sleep apnea about 6 years ago. I've had a mostly hate-hate relationship with my CPAP for most of that time. It was really hard to get used to. I even renamed it the Squid, it looked and felt like a squid sucking my face :) But, then I discovered Ambien :) Better living through chemistry! Yay!

Anyways, the point! Not that I have one, is that I thought my apnea would get better if I lost weight as well. I lost about 30 pounds, but it didn't get any better. *shrug* Losing weight doesn't work for everyone. I'm glad it worked for you though! I'm hoping to get to a place eventually where I don't need a drug to help me sleep with the Squid. I'm at least at a place where I do see the benefit of using it, which is nice.

Date: 2006-07-27 13:51 (UTC)
From: [identity profile] rivermyst.livejournal.com
I'm not a pill taker by any means, but I love ambien.

I sleep even better with Lunestra, but it makes water taste like ass and I always felt like I have bad breath on it.

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